[article] | Title : | Impact of Non-medical Out-of-pocket Expenses on Families of Children : With Cerebral Palsy Following Orthopaedic Surgery | | Material Type: | printed text | | Authors: | Vessey Judith A., Author ; DiFazio, Rachel L., Author ; Strou, Tania D, Author ; Snyde, Brian D, Author | | Publication Date: | 2018 | | Article on page: | p.101-107 | | Languages : | English (eng) Original Language : English (eng) |
in Journal of Pediatric Nursing > Vol.37 No.6 (Nov-Dec) 2017 [03/29/2018] . - p.101-107| Keywords: | Non-medical out-of-pocket expenses, Cerebral palsy, Financial burden, Impact on Family Scale, Assessment of Caregivers Experience with Neuromuscular Disease (ACEND), Children with Special Health Care Needs. | | Abstract: | Purpose
Limited research has been conducted on the non-medical out-of-pocket expenses (NOOPEs) incurred by families of children with chronic health conditions. The study objectives were to: 1) calculate the estimated NOOPEs incurred by families during hospitalization of their child, 2) identify predictors of high NOOPEs, and 3) assess the impact of the child's chronic health condition on the family's finances.
Design and Methods
Prospective observational study. Parents were included if their child was 3–20 years old, had severe, non-ambulatory cerebral palsy (CP), and scheduled for hip or spine surgery. Parents reported all NOOPEs incurred during their child's hospitalization using the Family Expense Diary. Families completed the subscales of the Impact on Family Scale and the Assessment of Caregivers Experience with Neuromuscular Disease. Descriptive and univariate and multiple hierarchical regression models were used in the analysis.
Results
Fifty two parents participated. The total NOOPEs ranged from $193.00 to $7192.71 (M = $2001.92) per hospitalization representing an average of 4% of the family's annual earned income. Caregiver age (F = 8.393, p < 0.001), income (F = 7.535, p < 0.001), and distance traveled to the hospital (F = 4.497, p = 0.039) were significant predictors of high NOOPEs. The subscale scores indicated that a child's chronic health condition had a significant impact on family finances.
Conclusions and Practice Implications
Hospitalization is associated with numerous NOOPEs that create additional financial demands for families caring for a child with severe CP. NOOPEs should be addressed when preparing families for their children's planned hospital admissions, especially those families of CSHCN who experience significant financial impacts secondary to their children's care. | | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27634 |
[article] Impact of Non-medical Out-of-pocket Expenses on Families of Children : With Cerebral Palsy Following Orthopaedic Surgery [printed text] / Vessey Judith A., Author ; DiFazio, Rachel L., Author ; Strou, Tania D, Author ; Snyde, Brian D, Author . - 2018 . - p.101-107. Languages : English ( eng) Original Language : English ( eng)
in Journal of Pediatric Nursing > Vol.37 No.6 (Nov-Dec) 2017 [03/29/2018] . - p.101-107| Keywords: | Non-medical out-of-pocket expenses, Cerebral palsy, Financial burden, Impact on Family Scale, Assessment of Caregivers Experience with Neuromuscular Disease (ACEND), Children with Special Health Care Needs. | | Abstract: | Purpose
Limited research has been conducted on the non-medical out-of-pocket expenses (NOOPEs) incurred by families of children with chronic health conditions. The study objectives were to: 1) calculate the estimated NOOPEs incurred by families during hospitalization of their child, 2) identify predictors of high NOOPEs, and 3) assess the impact of the child's chronic health condition on the family's finances.
Design and Methods
Prospective observational study. Parents were included if their child was 3–20 years old, had severe, non-ambulatory cerebral palsy (CP), and scheduled for hip or spine surgery. Parents reported all NOOPEs incurred during their child's hospitalization using the Family Expense Diary. Families completed the subscales of the Impact on Family Scale and the Assessment of Caregivers Experience with Neuromuscular Disease. Descriptive and univariate and multiple hierarchical regression models were used in the analysis.
Results
Fifty two parents participated. The total NOOPEs ranged from $193.00 to $7192.71 (M = $2001.92) per hospitalization representing an average of 4% of the family's annual earned income. Caregiver age (F = 8.393, p < 0.001), income (F = 7.535, p < 0.001), and distance traveled to the hospital (F = 4.497, p = 0.039) were significant predictors of high NOOPEs. The subscale scores indicated that a child's chronic health condition had a significant impact on family finances.
Conclusions and Practice Implications
Hospitalization is associated with numerous NOOPEs that create additional financial demands for families caring for a child with severe CP. NOOPEs should be addressed when preparing families for their children's planned hospital admissions, especially those families of CSHCN who experience significant financial impacts secondary to their children's care. | | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27634 |
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Add the result to your basket Refine your search Apply to external sources Make a suggestionServere childhood austism / Bessette, Jocelyn in MEDSURG, Vol.25 No.6 (Nov-Dec) 2016 ([02/06/2017])
