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Add the result to your basketSense of Coherence and Parenting Representation among Parents of Adolescents with Type 1 Diabetes / Goldberg, Alon in Journal of Pediatric Nursing, Vol.35 No.4 (Jul-Aug) 2017 ([09/04/2017])
Title : Sense of Coherence and Parenting Representation among Parents of Adolescents with Type 1 Diabetes Material Type: printed text Authors: Goldberg, Alon, Author ; Scharf, Miri, Author ; Wiseman, Hadas, Author Publication Date: 2017 Article on page: p.3-7 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.3-7Keywords: Type 1 diabetes, Adolescents, Sense of coherence, Parent–child relationships, Parenting representation. Abstract: Abstract
This study examines the association between parental sense of coherence (SOC) and maternal and paternal representations of parents of adolescents diagnosed with type 1 diabetes (IDDM).
Method
Seventy five mothers and fathers of adolescents (age 13–18) diagnosed with IDDM, were recruited. Data were gathered from a demographic and SOC questionnaires, and the Parenting Representations Interview (PRI-A).
Results
A significant association was found between mothers' and fathers' SOC and a more balanced description of parenting, and positive correlations between mothers' and fathers' SOC and their representations of the self as parent, representations of the adolescent, and relationships representations. Furthermore, a negative correlation was found between parents' SOC and less differentiated relationships.
Conclusions
SOC may promote well-being in spite of exposure to challenging circumstances as parenting an adolescent with IDDM. It appears that fathers and mothers need to and can be addressed as significant caregivers in any treatment or clinical intervention, as they have a relative involvement in taking care of children and therefore sharing the caregiving responsibilities and functioning as co-primary caregivers.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27261 [article] Sense of Coherence and Parenting Representation among Parents of Adolescents with Type 1 Diabetes [printed text] / Goldberg, Alon, Author ; Scharf, Miri, Author ; Wiseman, Hadas, Author . - 2017 . - p.3-7.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.3-7Keywords: Type 1 diabetes, Adolescents, Sense of coherence, Parent–child relationships, Parenting representation. Abstract: Abstract
This study examines the association between parental sense of coherence (SOC) and maternal and paternal representations of parents of adolescents diagnosed with type 1 diabetes (IDDM).
Method
Seventy five mothers and fathers of adolescents (age 13–18) diagnosed with IDDM, were recruited. Data were gathered from a demographic and SOC questionnaires, and the Parenting Representations Interview (PRI-A).
Results
A significant association was found between mothers' and fathers' SOC and a more balanced description of parenting, and positive correlations between mothers' and fathers' SOC and their representations of the self as parent, representations of the adolescent, and relationships representations. Furthermore, a negative correlation was found between parents' SOC and less differentiated relationships.
Conclusions
SOC may promote well-being in spite of exposure to challenging circumstances as parenting an adolescent with IDDM. It appears that fathers and mothers need to and can be addressed as significant caregivers in any treatment or clinical intervention, as they have a relative involvement in taking care of children and therefore sharing the caregiving responsibilities and functioning as co-primary caregivers.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27261
Title : Utilizing virtual reality and immersion video technology : as a focused learning tool for children with autism spectrum disorder Material Type: printed text Authors: Papathomas, Pelagia, Author ; Goldschmidt, Karen, Author Publication Date: 2017 Article on page: p.8-9 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.8-9Keywords: Virtual reality, ASD, Technology, Autism spectrum disorder, Learning tool. Abstract: Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by “persistent deficits in social communication and interaction across a variety of contexts” (American Psychological Association [APA], 2015, para. 1). The DSM-V further classified ASD into 3 severity levels, with children classified at level 1 exhibiting higher function and children classified at level 3 having most severe form of ASD. Much of the Virtual Reality (VR) research has been conducted with level 1 ASD children (Didehbani, Allen, Kandalat, Krawczyk, & Chapman, 2016). Curricular : BNS Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27262 [article] Utilizing virtual reality and immersion video technology : as a focused learning tool for children with autism spectrum disorder [printed text] / Papathomas, Pelagia, Author ; Goldschmidt, Karen, Author . - 2017 . - p.8-9.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.8-9Keywords: Virtual reality, ASD, Technology, Autism spectrum disorder, Learning tool. Abstract: Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by “persistent deficits in social communication and interaction across a variety of contexts” (American Psychological Association [APA], 2015, para. 1). The DSM-V further classified ASD into 3 severity levels, with children classified at level 1 exhibiting higher function and children classified at level 3 having most severe form of ASD. Much of the Virtual Reality (VR) research has been conducted with level 1 ASD children (Didehbani, Allen, Kandalat, Krawczyk, & Chapman, 2016). Curricular : BNS Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27262
Title : School Nurses' Experiences and Perceptions of : Healthy Eating School Environments Material Type: printed text Publication Date: 2017 Article on page: p.10-15 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.10-15Keywords: School nurses, Health promotion in schools, Healthy eating school environments, Farm to School programs. Abstract: School nurses provide health promotion and health services within schools, as healthy children have a greater potential for optimal learning. One of the school nurses' role is in encouraging healthy eating and increasing the availability of fruits and vegetables in the school. The purpose of this study was to explore and describe school nurses' perceptions of their role in promoting increased fruit and vegetable consumption in the school setting. One avenue to increased availability of fruits and vegetables in schools is Farm to School programs mandated by the Federal government to improve the health of school children. School nurses are optimally positioned to work with Farm to School programs to promote healthy eating. A secondary aim was to explore school nurses' knowledge, experiences and/or perceptions of the Farm to School program to promote fruit and vegetable consumption in the school setting. Three themes emerged from the focus groups: If There Were More of Me, I Could Do More; Food Environment in Schools; School Nurses Promote Health. School nurses reported that they addressed health issues more broadly in their roles as educator, collaborator, advocate and modeling healthy behaviors. Most of the participants knew of Farm to School programs, but only two school nurses worked in schools that participated in the program. Consequently, the participants reported having little or no experiences with the Farm to School programs. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27435 [article] School Nurses' Experiences and Perceptions of : Healthy Eating School Environments [printed text] . - 2017 . - p.10-15.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.10-15Keywords: School nurses, Health promotion in schools, Healthy eating school environments, Farm to School programs. Abstract: School nurses provide health promotion and health services within schools, as healthy children have a greater potential for optimal learning. One of the school nurses' role is in encouraging healthy eating and increasing the availability of fruits and vegetables in the school. The purpose of this study was to explore and describe school nurses' perceptions of their role in promoting increased fruit and vegetable consumption in the school setting. One avenue to increased availability of fruits and vegetables in schools is Farm to School programs mandated by the Federal government to improve the health of school children. School nurses are optimally positioned to work with Farm to School programs to promote healthy eating. A secondary aim was to explore school nurses' knowledge, experiences and/or perceptions of the Farm to School program to promote fruit and vegetable consumption in the school setting. Three themes emerged from the focus groups: If There Were More of Me, I Could Do More; Food Environment in Schools; School Nurses Promote Health. School nurses reported that they addressed health issues more broadly in their roles as educator, collaborator, advocate and modeling healthy behaviors. Most of the participants knew of Farm to School programs, but only two school nurses worked in schools that participated in the program. Consequently, the participants reported having little or no experiences with the Farm to School programs. Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27435
Title : Implementation of a School Nurse-led Intervention for : Children With Severe Obesity in New York City Schools Material Type: printed text Authors: Schroede, Krista, Author ; Jia, Haomiao, Author ; Wang, Claire, Author ; Smaldone, Arlene, Author ; Metrics, PlumX, Author Publication Date: 2017 Article on page: p.10-15 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.10-15Keywords: Childhood obesity, Nursing, School nursing, School health. Abstract: Purpose
The Healthy Options and Physical Activity Program (HOP) is a school nurse-led intervention for children with severe obesity. HOP was developed by experts at the New York City Department of Health and Mental Hygiene and implemented in New York City schools beginning in 2012. The purpose of this study was to evaluate HOP implementation with the goal of informing HOP refinement and potential future HOP dissemination.
Design and Methods
This study entailed a retrospective analysis of secondary data. Analytic methods included descriptive statistics, Wilcoxon rank sum and Chi square tests, and multivariate logistic regression.
Results
During the 2012–2013 school year, 20,518 children were eligible for HOP. Of these, 1054 (5.1%) were enrolled in the program. On average, enrolled children attended one HOP session during the school year. Parent participation was low (3.2% of HOP sessions). Low nurse workload, low school poverty, higher grade level, higher BMI percentile, and chronic illness diagnosis were associated with student enrollment in HOP.
Conclusions
As currently delivered, HOP is not likely to be efficacious. Lessons learned from this evaluation are applicable to future nurse-led obesity interventions.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27436 [article] Implementation of a School Nurse-led Intervention for : Children With Severe Obesity in New York City Schools [printed text] / Schroede, Krista, Author ; Jia, Haomiao, Author ; Wang, Claire, Author ; Smaldone, Arlene, Author ; Metrics, PlumX, Author . - 2017 . - p.10-15.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.10-15Keywords: Childhood obesity, Nursing, School nursing, School health. Abstract: Purpose
The Healthy Options and Physical Activity Program (HOP) is a school nurse-led intervention for children with severe obesity. HOP was developed by experts at the New York City Department of Health and Mental Hygiene and implemented in New York City schools beginning in 2012. The purpose of this study was to evaluate HOP implementation with the goal of informing HOP refinement and potential future HOP dissemination.
Design and Methods
This study entailed a retrospective analysis of secondary data. Analytic methods included descriptive statistics, Wilcoxon rank sum and Chi square tests, and multivariate logistic regression.
Results
During the 2012–2013 school year, 20,518 children were eligible for HOP. Of these, 1054 (5.1%) were enrolled in the program. On average, enrolled children attended one HOP session during the school year. Parent participation was low (3.2% of HOP sessions). Low nurse workload, low school poverty, higher grade level, higher BMI percentile, and chronic illness diagnosis were associated with student enrollment in HOP.
Conclusions
As currently delivered, HOP is not likely to be efficacious. Lessons learned from this evaluation are applicable to future nurse-led obesity interventions.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27436
Title : Experiences of Daily Life Among Adolescents With Asthma – : A Struggle With Ambivalence Material Type: printed text Authors: Jonsson, Marina, Author ; Schuster, Marja, Author ; Protudjer, Jennifer L.P., Author Publication Date: 2017 Article on page: p.23-29 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.23-29Keywords: Adolescence, Asthma care, Daily life experiences, Person-centered care. Abstract: Objective
There is limited knowledge about how adolescents with asthma view their disease in daily life and how these views impact on management. The aim of this study was to describe experiences of daily life, with particular focus on thoughts, feelings and management of adolescents with asthma.
Methods
In this qualitative study, data were obtained from 10 interviews with adolescents (aged 16–18 years) with asthma recruited from the Swedish population-based prospective birth cohort, BAMSE. Data were analysed through Systematic Text Condensation.
Results
Experiences of daily life among adolescents with asthma were defined in four categories: Insight and understanding; Asthma not the focus of daily life; Being acknowledged and, Being affected by asthma symptoms. The adolescents had developed an insight into and understanding of their disease, but did not want asthma to be the focus of their daily lives. The adolescents wanted their asthma to be acknowledged, but not to the point that they were defined by their asthma. They reported having many asthma symptoms, especially during physical activity, but also described a desire to feel healthy, “normal” and like their peers.
Conclusions
Having asthma in adolescence involves several struggles with ambivalence between adapting socially, feeling healthy and managing one's asthma.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27437 [article] Experiences of Daily Life Among Adolescents With Asthma – : A Struggle With Ambivalence [printed text] / Jonsson, Marina, Author ; Schuster, Marja, Author ; Protudjer, Jennifer L.P., Author . - 2017 . - p.23-29.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.23-29Keywords: Adolescence, Asthma care, Daily life experiences, Person-centered care. Abstract: Objective
There is limited knowledge about how adolescents with asthma view their disease in daily life and how these views impact on management. The aim of this study was to describe experiences of daily life, with particular focus on thoughts, feelings and management of adolescents with asthma.
Methods
In this qualitative study, data were obtained from 10 interviews with adolescents (aged 16–18 years) with asthma recruited from the Swedish population-based prospective birth cohort, BAMSE. Data were analysed through Systematic Text Condensation.
Results
Experiences of daily life among adolescents with asthma were defined in four categories: Insight and understanding; Asthma not the focus of daily life; Being acknowledged and, Being affected by asthma symptoms. The adolescents had developed an insight into and understanding of their disease, but did not want asthma to be the focus of their daily lives. The adolescents wanted their asthma to be acknowledged, but not to the point that they were defined by their asthma. They reported having many asthma symptoms, especially during physical activity, but also described a desire to feel healthy, “normal” and like their peers.
Conclusions
Having asthma in adolescence involves several struggles with ambivalence between adapting socially, feeling healthy and managing one's asthma.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27437
Title : Assessment of Safe Sleep : Validation of the Parent Newborn Sleep Safety Survey Material Type: printed text Publication Date: 2017 Article on page: p.30-35 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.30-35Keywords: Safe sleep, Assessment, SIDS, SUID, Infant sleep, Suffocation. Abstract: Purpose
Sudden Infant Death Syndrome (SIDS) and suffocation account for more than half of all Sudden Unexpected Infant Deaths (SUID). The American Academy of Pediatrics (AAP) recommendations describe the safest environments to protect infants. This study compared parent responses on the Newborn Sleep Safety Survey and observational assessments (N = 72) of infant sleep environments in families thought to be at high-risk for non-compliance with AAP recommendations.
Design and Methods
A naturalistic study of participants enrolled in two home visitation support programs was used. Observed risks ranged from 36.6% (never use pacifier) to 4.3% (never use firm mattress).
Results
Results comparing report to observation demonstrated acceptable concordance. Five items had fair concordance (Kappa > .4), four showed moderate concordance (Kappa > .6), and one excellent concordance (Kappa > .8). Although direct observation of safety behaviors is the gold standard in the injury prevention field, direct observation is logistically difficult, time consuming, and costly.
Conclusions
Research and interventions aimed at a reduction of Sudden Infant Death Syndrome (SIDS) and suffocation require accurate assessment of the infant sleep environment. This study provides acceptable evidence for the use of the Newborn Sleep Safety Survey as an alternative to direct observation to assess parent adherence to recommendations. Limitations are discussed.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27438 [article] Assessment of Safe Sleep : Validation of the Parent Newborn Sleep Safety Survey [printed text] . - 2017 . - p.30-35.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.30-35Keywords: Safe sleep, Assessment, SIDS, SUID, Infant sleep, Suffocation. Abstract: Purpose
Sudden Infant Death Syndrome (SIDS) and suffocation account for more than half of all Sudden Unexpected Infant Deaths (SUID). The American Academy of Pediatrics (AAP) recommendations describe the safest environments to protect infants. This study compared parent responses on the Newborn Sleep Safety Survey and observational assessments (N = 72) of infant sleep environments in families thought to be at high-risk for non-compliance with AAP recommendations.
Design and Methods
A naturalistic study of participants enrolled in two home visitation support programs was used. Observed risks ranged from 36.6% (never use pacifier) to 4.3% (never use firm mattress).
Results
Results comparing report to observation demonstrated acceptable concordance. Five items had fair concordance (Kappa > .4), four showed moderate concordance (Kappa > .6), and one excellent concordance (Kappa > .8). Although direct observation of safety behaviors is the gold standard in the injury prevention field, direct observation is logistically difficult, time consuming, and costly.
Conclusions
Research and interventions aimed at a reduction of Sudden Infant Death Syndrome (SIDS) and suffocation require accurate assessment of the infant sleep environment. This study provides acceptable evidence for the use of the Newborn Sleep Safety Survey as an alternative to direct observation to assess parent adherence to recommendations. Limitations are discussed.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27438
Title : Precision, Sensitivity and Patient Preference of Non-Invasive Thermometers in a : Pediatric Surgical Acute Care Setting Material Type: printed text Publication Date: 2017 Article on page: p.36-41 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.36-41Keywords: Temporal artery thermometer, Pediatrics, Precision, Sensitivity, Preference Abstract: Purpose
The purpose of the project was to compare the temporal artery thermometer (TAT) to the digital probe thermometer readings at axillary or oral sites, to determine the relative precision and sensitivity of the three methods of thermometry, to compare their readings to core temperature when feasible, and to survey patient and family thermometer preferences.
Design & Methods
A randomized crossover design in a 70-bed surgical unit over eight months. Two sets of temperature measurements were obtained for each patient: TAT, axillary, oral (depending on patient ability) and a bladder temperature representing core body temperature (when available). Each method was used twice on each patient, to examine within-method precision. Following measurement, patients or caregivers provided their thermometer preference. For younger/nonverbal patients, a professional observer recorded a disruption score. N = 298 patients were enrolled
Results
TAT was more precise than oral and axillary thermometers (p < 0.001 vs. axillary, p = 0.001 vs. oral). TAT measurements were higher on average than axillary and oral, by 0.7 °C and 0.6 °C respectively (p < 0.001). TAT's disruption score for younger patients was 0.6 points lower on average than axillary (p < 0.001). 84% of patients and families who indicated a clear thermometry preference chose TAT. Only 3 patients had bladder-temperature devices, and therefore accuracy could not be analyzed.
Conclusions
TAT is more precise, more fever sensitive, less disruptive to younger children, and more preferred by patients and families.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27439 [article] Precision, Sensitivity and Patient Preference of Non-Invasive Thermometers in a : Pediatric Surgical Acute Care Setting [printed text] . - 2017 . - p.36-41.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.36-41Keywords: Temporal artery thermometer, Pediatrics, Precision, Sensitivity, Preference Abstract: Purpose
The purpose of the project was to compare the temporal artery thermometer (TAT) to the digital probe thermometer readings at axillary or oral sites, to determine the relative precision and sensitivity of the three methods of thermometry, to compare their readings to core temperature when feasible, and to survey patient and family thermometer preferences.
Design & Methods
A randomized crossover design in a 70-bed surgical unit over eight months. Two sets of temperature measurements were obtained for each patient: TAT, axillary, oral (depending on patient ability) and a bladder temperature representing core body temperature (when available). Each method was used twice on each patient, to examine within-method precision. Following measurement, patients or caregivers provided their thermometer preference. For younger/nonverbal patients, a professional observer recorded a disruption score. N = 298 patients were enrolled
Results
TAT was more precise than oral and axillary thermometers (p < 0.001 vs. axillary, p = 0.001 vs. oral). TAT measurements were higher on average than axillary and oral, by 0.7 °C and 0.6 °C respectively (p < 0.001). TAT's disruption score for younger patients was 0.6 points lower on average than axillary (p < 0.001). 84% of patients and families who indicated a clear thermometry preference chose TAT. Only 3 patients had bladder-temperature devices, and therefore accuracy could not be analyzed.
Conclusions
TAT is more precise, more fever sensitive, less disruptive to younger children, and more preferred by patients and families.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27439
Title : Maintaining Integrity : How Nurses Navigate Boundaries in Pediatric Palliative Care Material Type: printed text Publication Date: 2017 Article on page: p.42-49 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.42-49Keywords: Pediatric palliative care, Nursing, Nurses, Boundaries, Grounded theory. Abstract: Purpose
To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families.
Design and methods
Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses from four practice sites was interviewed using a semi-structured interview guide.
Results
Nurses across the sites engaged in a process of maintaining integrity whereby they integrated two competing, yet essential, aspects of their nursing role – behaving professionally and connecting personally. When skillful in both aspects, nurses were satisfied that they provided high-quality, family-centered care to children and families within a clearly defined therapeutic relationship. At times, tension existed between these two aspects and nurses attempted to mitigate the tension. Unsuccessful mitigation attempts led to compromised integrity characterized by specific behavioral and emotional indicators. Successfully mitigating the tension with strategies that prioritized their own needs and healing, nurses eventually restored integrity. Maintaining integrity involved a continuous effort to preserve completeness of both oneself and one's nursing practice.
Conclusions
Study findings provide a theoretical conceptualization to describe the process nurses use in navigating boundaries and contribute to an understanding for how this specialized area of care impacts health care providers.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27440 [article] Maintaining Integrity : How Nurses Navigate Boundaries in Pediatric Palliative Care [printed text] . - 2017 . - p.42-49.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.42-49Keywords: Pediatric palliative care, Nursing, Nurses, Boundaries, Grounded theory. Abstract: Purpose
To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families.
Design and methods
Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses from four practice sites was interviewed using a semi-structured interview guide.
Results
Nurses across the sites engaged in a process of maintaining integrity whereby they integrated two competing, yet essential, aspects of their nursing role – behaving professionally and connecting personally. When skillful in both aspects, nurses were satisfied that they provided high-quality, family-centered care to children and families within a clearly defined therapeutic relationship. At times, tension existed between these two aspects and nurses attempted to mitigate the tension. Unsuccessful mitigation attempts led to compromised integrity characterized by specific behavioral and emotional indicators. Successfully mitigating the tension with strategies that prioritized their own needs and healing, nurses eventually restored integrity. Maintaining integrity involved a continuous effort to preserve completeness of both oneself and one's nursing practice.
Conclusions
Study findings provide a theoretical conceptualization to describe the process nurses use in navigating boundaries and contribute to an understanding for how this specialized area of care impacts health care providers.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27440
Title : Social Inclusion of Children With Down Syndrome : Jewish and Muslim Mothers' Knowledge, Attitudes, Beliefs, and Behavioral Intentions Material Type: printed text Authors: Barnoy, Sivia, Author ; Biton, Anna, Author Publication Date: 2017 Article on page: p.50-56 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.50-56Keywords: Down syndrome, Behavioral intentions, Children, Mothers, Social inclusion. Abstract: Purpose
The current study examined mothers' knowledge, beliefs, attitudes, and intention to socially integrate children with Down syndrome (DS) in the family, with children without disabilities and school system.
Design and Methods
A questionnaire based on a descriptive, cross-sectional design was administered to Jewish and Muslim mothers. The questionnaire included demographics, knowledge, beliefs, attitudes, and intention to integrate children with DS. Analysis included a regression test of intention to integrate children with DS and a one-way ANOVA for differences between Jewish and Muslim mothers.
Results
Nearly all the Jewish mothers (93.7%) and about half the Muslim mothers (52.8%) had performed screening tests for DS during their pregnancy. All mothers displayed low knowledge level about DS. Being Jewish (t = 2.89; p = 0.005) and holding more positive beliefs (t = 3.39; p = 0.001) were associated with a higher intention to socially integrate children with DS. Significant positive correlations were found between beliefs and attitudes (r = 0.65; p < 0.001) and between attitudes and intention to socially integrate children with DS (r = 0.39; p < 0.001).
Conclusions
This study shows that Jewish and Muslim mothers' beliefs and attitudes towards social inclusion of children with DS are quite positive and the intention to integrate children with DS in the family, with children without disabilities, and in the mainstream school system is high. However, their level of knowledge about DS is low.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27441 [article] Social Inclusion of Children With Down Syndrome : Jewish and Muslim Mothers' Knowledge, Attitudes, Beliefs, and Behavioral Intentions [printed text] / Barnoy, Sivia, Author ; Biton, Anna, Author . - 2017 . - p.50-56.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.50-56Keywords: Down syndrome, Behavioral intentions, Children, Mothers, Social inclusion. Abstract: Purpose
The current study examined mothers' knowledge, beliefs, attitudes, and intention to socially integrate children with Down syndrome (DS) in the family, with children without disabilities and school system.
Design and Methods
A questionnaire based on a descriptive, cross-sectional design was administered to Jewish and Muslim mothers. The questionnaire included demographics, knowledge, beliefs, attitudes, and intention to integrate children with DS. Analysis included a regression test of intention to integrate children with DS and a one-way ANOVA for differences between Jewish and Muslim mothers.
Results
Nearly all the Jewish mothers (93.7%) and about half the Muslim mothers (52.8%) had performed screening tests for DS during their pregnancy. All mothers displayed low knowledge level about DS. Being Jewish (t = 2.89; p = 0.005) and holding more positive beliefs (t = 3.39; p = 0.001) were associated with a higher intention to socially integrate children with DS. Significant positive correlations were found between beliefs and attitudes (r = 0.65; p < 0.001) and between attitudes and intention to socially integrate children with DS (r = 0.39; p < 0.001).
Conclusions
This study shows that Jewish and Muslim mothers' beliefs and attitudes towards social inclusion of children with DS are quite positive and the intention to integrate children with DS in the family, with children without disabilities, and in the mainstream school system is high. However, their level of knowledge about DS is low.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27441
Title : Don't Push Your Luck! Educational Family Board (Not Bored) : Game for School-Age Children Living with Chronic Conditions Material Type: printed text Authors: Kennedy, Andrea, Author ; Semple, Lisa, Author ; Alderson, Kerri, Author ; Bouskilll, Vanessa, Author ; Karasevich, Janice, Author Publication Date: 2017 Article on page: p.57-64 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.57-64Keywords: Educational board game, Chronic condition, Cystic fibrosis, Family, Hemophilia, School-age children, Self-care Abstract: Purpose
Children who are living with chronic conditions may be supported in self-care through enjoyable active learning and family social processes. This research focused on development and evaluation of “Don't Push Your Luck!”, an educational board game designed to inspire family discussion about chronic conditions, and help affected children learn about self-care choices and consequences.
Design and Methods
Mixed-method research was conducted with families from one outpatient Cystic Fibrosis Clinic and four Hemophilia Treatment Centres in Canada and United States (N = 72). In phase I, board game prototype and questionnaires were refined with affected boys, siblings, and parents living with hemophilia (n = 11), compared with families living with cystic fibrosis (n = 11). In phase II, final board game was evaluated with families living with hemophilia (n = 50). Data collection included pre-post-game questionnaires on decision-making and Haemo-QoL Index©, and post-game enjoyment. Analysis included descriptive statistics, inferential statistics (non-parametric), and qualitative themes.
Results
Findings revealed this game was an enjoyable and effective resource to engage families in self-care discussions. Key themes included communication, being involved, knowing, decisions and consequences, and being connected. Qualitative and quantitative findings aligned. Statistical significance suggests the game enhanced family engagement to support decision-making skills, as parents identified that the game helped them talk about important topics, and children gained insight regarding family supports and self-care responsibility.
Conclusions
This board game was an effective, developmentally appropriate family resource to facilitate engagement and conversation about everyday life experiences in preparation for self-care.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27442 [article] Don't Push Your Luck! Educational Family Board (Not Bored) : Game for School-Age Children Living with Chronic Conditions [printed text] / Kennedy, Andrea, Author ; Semple, Lisa, Author ; Alderson, Kerri, Author ; Bouskilll, Vanessa, Author ; Karasevich, Janice, Author . - 2017 . - p.57-64.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.57-64Keywords: Educational board game, Chronic condition, Cystic fibrosis, Family, Hemophilia, School-age children, Self-care Abstract: Purpose
Children who are living with chronic conditions may be supported in self-care through enjoyable active learning and family social processes. This research focused on development and evaluation of “Don't Push Your Luck!”, an educational board game designed to inspire family discussion about chronic conditions, and help affected children learn about self-care choices and consequences.
Design and Methods
Mixed-method research was conducted with families from one outpatient Cystic Fibrosis Clinic and four Hemophilia Treatment Centres in Canada and United States (N = 72). In phase I, board game prototype and questionnaires were refined with affected boys, siblings, and parents living with hemophilia (n = 11), compared with families living with cystic fibrosis (n = 11). In phase II, final board game was evaluated with families living with hemophilia (n = 50). Data collection included pre-post-game questionnaires on decision-making and Haemo-QoL Index©, and post-game enjoyment. Analysis included descriptive statistics, inferential statistics (non-parametric), and qualitative themes.
Results
Findings revealed this game was an enjoyable and effective resource to engage families in self-care discussions. Key themes included communication, being involved, knowing, decisions and consequences, and being connected. Qualitative and quantitative findings aligned. Statistical significance suggests the game enhanced family engagement to support decision-making skills, as parents identified that the game helped them talk about important topics, and children gained insight regarding family supports and self-care responsibility.
Conclusions
This board game was an effective, developmentally appropriate family resource to facilitate engagement and conversation about everyday life experiences in preparation for self-care.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27442
Title : Contribution of Benson's Relaxation Technique and Brief Psycho-Educational Intervention on Quality of Life of Primary Caregivers of Iranian Children with Chronic Diseases Material Type: printed text Authors: Mowla, Forough, Author ; Mehrnoush, Oinanlou, Author Publication Date: 2017 Article on page: p.65-71 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.65-71Keywords: Primary caregivers, Children, Chronic diseases, Quality of life, Benson's Relaxation Technique Abstract: Background
Chronic diseases leave a significant effect on not only the afflicted children but also their parents. Chronic diseases in children may also influence their parents' or primary caregivers' quality of life (QoL).
Objective
To determine the effectiveness of a Brief Psycho-educational Intervention (BPI) and Benson's Relaxation Technique (BRT) on the QoL of primary caregivers of children with chronic diseases.
Methods
The present quasi-experimental pre-test post-test design was conducted on 100 parents with children who had one chronic disease (50 in each of the control and intervention groups) and were admitted to two state-run pediatric hospitals in Tehran, Iran in 2014. The primary caregivers' QoL was assessed using the SF-36 questionnaire before (T1) and four weeks after the intervention (T2). The training was done in four 60–70 minute sessions over one week with a 4-week follow-up. Paired t-test, independent t-test, chi-square and Fisher's exact tests were used to analyze the data.
Results
On average, large effect sizes (ES ≥ 0.80) were observed after interventions in SF-36 subscales that measured the effect of emotional roles. Small (0.20–0.49) to moderate (0.50–0.79) ESs were found in subscales measuring physical functioning, physical-role, bodily pain, vitality, social functioning and mental health. General health scores remained relatively unchanged at T2.
Conclusion
These results suggested that BPI and BRT were effective strategies to improve the QoL of primary caregivers. Furthermore, interventions with low cost, and good safety and outcome could improve the QoL of primary caregivers of children with chronic diseases.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27443 [article] Contribution of Benson's Relaxation Technique and Brief Psycho-Educational Intervention on Quality of Life of Primary Caregivers of Iranian Children with Chronic Diseases [printed text] / Mowla, Forough, Author ; Mehrnoush, Oinanlou, Author . - 2017 . - p.65-71.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.65-71Keywords: Primary caregivers, Children, Chronic diseases, Quality of life, Benson's Relaxation Technique Abstract: Background
Chronic diseases leave a significant effect on not only the afflicted children but also their parents. Chronic diseases in children may also influence their parents' or primary caregivers' quality of life (QoL).
Objective
To determine the effectiveness of a Brief Psycho-educational Intervention (BPI) and Benson's Relaxation Technique (BRT) on the QoL of primary caregivers of children with chronic diseases.
Methods
The present quasi-experimental pre-test post-test design was conducted on 100 parents with children who had one chronic disease (50 in each of the control and intervention groups) and were admitted to two state-run pediatric hospitals in Tehran, Iran in 2014. The primary caregivers' QoL was assessed using the SF-36 questionnaire before (T1) and four weeks after the intervention (T2). The training was done in four 60–70 minute sessions over one week with a 4-week follow-up. Paired t-test, independent t-test, chi-square and Fisher's exact tests were used to analyze the data.
Results
On average, large effect sizes (ES ≥ 0.80) were observed after interventions in SF-36 subscales that measured the effect of emotional roles. Small (0.20–0.49) to moderate (0.50–0.79) ESs were found in subscales measuring physical functioning, physical-role, bodily pain, vitality, social functioning and mental health. General health scores remained relatively unchanged at T2.
Conclusion
These results suggested that BPI and BRT were effective strategies to improve the QoL of primary caregivers. Furthermore, interventions with low cost, and good safety and outcome could improve the QoL of primary caregivers of children with chronic diseases.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27443
Title : A Pilot Study Evaluating the Impact of an Adherence-promoting Intervention Among Nonadherent Youth : With Inflammatory Bowel Disease Material Type: printed text Authors: Maddux, Michele, Author ; Delurgio, Stephen, Author Publication Date: 2017 Article on page: p.72-77 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.72-77Keywords: Inflammatory bowel disease, Adolescents, Self-management, Intervention. Abstract: Purpose
This study examined the feasibility and impact of a multicomponent adherence intervention among youth with Inflammatory Bowel Disease (IBD) who presented to clinic with poor adherence.
Design and Methods
Medical providers referred twelve adolescents for the intervention, who participated in 4 weekly visits with a caregiver aimed at improving adherence.
Results
Intervention session attendance was 100% and the intervention was rated as feasible and acceptable. Mean adherence increased 12% from baseline to post-intervention (p < 0.01), and 6% from baseline to 1-month follow-up (p < 0.025). A generalized linear model revealed significantly greater adherence from baseline to post-intervention (p < 0.001), and from baseline to 1-month follow-up (p < 0.01). Logistic Regression revealed a nearly 2:1 odds ratio during post-intervention when compared to the Baseline period (p < 0.001).
Conclusions
Findings suggest that the delivery of a multicompoment adherence intervention to poorly adherent youth with IBD can result in significant improvements in their adherence to oral medication.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27444 [article] A Pilot Study Evaluating the Impact of an Adherence-promoting Intervention Among Nonadherent Youth : With Inflammatory Bowel Disease [printed text] / Maddux, Michele, Author ; Delurgio, Stephen, Author . - 2017 . - p.72-77.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.72-77Keywords: Inflammatory bowel disease, Adolescents, Self-management, Intervention. Abstract: Purpose
This study examined the feasibility and impact of a multicomponent adherence intervention among youth with Inflammatory Bowel Disease (IBD) who presented to clinic with poor adherence.
Design and Methods
Medical providers referred twelve adolescents for the intervention, who participated in 4 weekly visits with a caregiver aimed at improving adherence.
Results
Intervention session attendance was 100% and the intervention was rated as feasible and acceptable. Mean adherence increased 12% from baseline to post-intervention (p < 0.01), and 6% from baseline to 1-month follow-up (p < 0.025). A generalized linear model revealed significantly greater adherence from baseline to post-intervention (p < 0.001), and from baseline to 1-month follow-up (p < 0.01). Logistic Regression revealed a nearly 2:1 odds ratio during post-intervention when compared to the Baseline period (p < 0.001).
Conclusions
Findings suggest that the delivery of a multicompoment adherence intervention to poorly adherent youth with IBD can result in significant improvements in their adherence to oral medication.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27444
Title : Psychometric Properties of the Turkish Version of Caregiver Burden Index (CBI) : for Parents of Children with Allergies Material Type: printed text Authors: Ekim, Ayfer, Author ; Hecan, Melis, Author ; Orenm Serkan, Author Publication Date: 2017 Article on page: p.78-82 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.78-82Keywords: Allergy, Caregiver burden, Child, Parent, Reliability, Validity. Abstract: Purpose
The purpose of this study was to examine the psychometric properties of the Caregiver Burden Index (CBI) in Turkish mothers of children with allergies.
Method
The participants of this methodological study were 213 mothers of children with allergies between 6 and 12 years. Construct validity was evaluated through factor analysis and reliability was evaluated through internal consistency and item-total correlation.
Results
In reliability analysis, the overall Cronbach's alpha value (0.85) demonstrated a high level of reliability. The corrected item-total correlation varied between 0.63 and 0.84. In exploratory factor analysis, it was detected that 3 factors structure explained 73.6% of the total variance.
Conclusion
This study indicated that the CBI is a valid and reliable tool to assess the caregiver burden of mothers of Turkish children with allergies.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27445 [article] Psychometric Properties of the Turkish Version of Caregiver Burden Index (CBI) : for Parents of Children with Allergies [printed text] / Ekim, Ayfer, Author ; Hecan, Melis, Author ; Orenm Serkan, Author . - 2017 . - p.78-82.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.78-82Keywords: Allergy, Caregiver burden, Child, Parent, Reliability, Validity. Abstract: Purpose
The purpose of this study was to examine the psychometric properties of the Caregiver Burden Index (CBI) in Turkish mothers of children with allergies.
Method
The participants of this methodological study were 213 mothers of children with allergies between 6 and 12 years. Construct validity was evaluated through factor analysis and reliability was evaluated through internal consistency and item-total correlation.
Results
In reliability analysis, the overall Cronbach's alpha value (0.85) demonstrated a high level of reliability. The corrected item-total correlation varied between 0.63 and 0.84. In exploratory factor analysis, it was detected that 3 factors structure explained 73.6% of the total variance.
Conclusion
This study indicated that the CBI is a valid and reliable tool to assess the caregiver burden of mothers of Turkish children with allergies.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27445
Title : Mexican Adolescents' Self-Reports of Parental Monitoring and Sexual Communication : for Prevention of Sexual Risk Behavior Material Type: printed text Authors: Paloma, Sandra, Author Publication Date: 2017 Article on page: p.83-89 Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.83-89Keywords: Adolescents, Communication, Parental support, Sexual behavior Abstract: Assess perceptions of parental monitoring and sexual communication for sexual health promotion among adolescents who are Mexican.
Design and methods
Adolescents (N = 153, n = 85 females, n = 68 males) between 14 years (n = 80) and 15 years (n = 73) were recruited at a public high school in Monterrey in the state of Nuevo Leon, Mexico. All participants were living with a parent(s). Descriptive statistical analyses were conducted to assess sociodemographic characteristics of the group. Chi-square analyses were conducted to identify potential group differences among the adolescents by age, gender and sexual activity regarding responses to each item of the Spanish Version Parental Monitoring and Sexual Communication Scale (a = 0.88).
Results
Eleven percent of adolescents self-reported sexual activity. Significant group differences by age, gender and sexual activity were identified concerning parental monitoring and sexual communication including: less parental monitoring with older age (14 versus 15 year olds); more parental monitoring for females than males; less monitoring for sexually active adolescents; greater sexual communication for males than females, and among adolescents who were sexually active.
Conclusions
An assessment of adolescents' perceptions of parental monitoring and sexual communication is useful for development of strategies concerning sexual health promotion in Mexico.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27446 [article] Mexican Adolescents' Self-Reports of Parental Monitoring and Sexual Communication : for Prevention of Sexual Risk Behavior [printed text] / Paloma, Sandra, Author . - 2017 . - p.83-89.
Languages : English (eng) Original Language : English (eng)
in Journal of Pediatric Nursing > Vol.35 No.4 (Jul-Aug) 2017 [09/04/2017] . - p.83-89Keywords: Adolescents, Communication, Parental support, Sexual behavior Abstract: Assess perceptions of parental monitoring and sexual communication for sexual health promotion among adolescents who are Mexican.
Design and methods
Adolescents (N = 153, n = 85 females, n = 68 males) between 14 years (n = 80) and 15 years (n = 73) were recruited at a public high school in Monterrey in the state of Nuevo Leon, Mexico. All participants were living with a parent(s). Descriptive statistical analyses were conducted to assess sociodemographic characteristics of the group. Chi-square analyses were conducted to identify potential group differences among the adolescents by age, gender and sexual activity regarding responses to each item of the Spanish Version Parental Monitoring and Sexual Communication Scale (a = 0.88).
Results
Eleven percent of adolescents self-reported sexual activity. Significant group differences by age, gender and sexual activity were identified concerning parental monitoring and sexual communication including: less parental monitoring with older age (14 versus 15 year olds); more parental monitoring for females than males; less monitoring for sexually active adolescents; greater sexual communication for males than females, and among adolescents who were sexually active.
Conclusions
An assessment of adolescents' perceptions of parental monitoring and sexual communication is useful for development of strategies concerning sexual health promotion in Mexico.Link for e-copy: http://www.journals.elsevier.com/journal-of-pediatric-nursing/ Record link: http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27446
