[article] | Title : | Recommendations for the Establishment of Disorders/Differences of : Sex Development Interdisciplinary Care Clinics for Youth | | Material Type: | printed text | | Authors: | Bakula, Dana M., Author ; Sharke, Christina M., Author ; Wolfe-Christense, Cortney, Author | | Publication Date: | 2018 | | Article on page: | p.79-85 | | Languages : | English (eng) Original Language : English (eng) |
in Journal of Pediatric Nursing > Vol.37 No.6 (Nov-Dec) 2017 [03/29/2018] . - p.79-85| Keywords: | Disorders/differences of sex development, DSD, Interdisciplinary care, Multidisciplinary care, Clinic development | | Abstract: | Purpose
Provide recommendations for the development of an interdisciplinary care (IDC) clinic for the treatment of youth with disorders/differences of sex development (DSD). DSD consist of a group of complex congenital medical disorders in which the development of chromosomal, gonadal, or anatomical sex is atypical. Youth with DSD require care from multiple specialized healthcare disciplines, including several medical specialties, surgery, nursing, and mental health.
Method
Recommendations are based on an interdisciplinary care clinic model that allows for a team of relevant professionals who share knowledge, ideas, and responsibility of care. The framework established in this article is based largely on experiences at an established DSD clinic, as well as observations of multiple clinics across the United States.
Results
Preliminary outcome data on clinic adherence to treatment protocol under an IDC model are provided.
Conclusions
To meet the diverse healthcare needs of youth with DSD, comprehensive care clinics are recommended; however, few such clinics exist in the United States. Establishing new comprehensive DSD clinics can be challenging due to the highly unique treatment of DSD, but the current paper expands the literature available to guide clinic development in the United States. | | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27629 |
[article] Recommendations for the Establishment of Disorders/Differences of : Sex Development Interdisciplinary Care Clinics for Youth [printed text] / Bakula, Dana M., Author ; Sharke, Christina M., Author ; Wolfe-Christense, Cortney, Author . - 2018 . - p.79-85. Languages : English ( eng) Original Language : English ( eng)
in Journal of Pediatric Nursing > Vol.37 No.6 (Nov-Dec) 2017 [03/29/2018] . - p.79-85| Keywords: | Disorders/differences of sex development, DSD, Interdisciplinary care, Multidisciplinary care, Clinic development | | Abstract: | Purpose
Provide recommendations for the development of an interdisciplinary care (IDC) clinic for the treatment of youth with disorders/differences of sex development (DSD). DSD consist of a group of complex congenital medical disorders in which the development of chromosomal, gonadal, or anatomical sex is atypical. Youth with DSD require care from multiple specialized healthcare disciplines, including several medical specialties, surgery, nursing, and mental health.
Method
Recommendations are based on an interdisciplinary care clinic model that allows for a team of relevant professionals who share knowledge, ideas, and responsibility of care. The framework established in this article is based largely on experiences at an established DSD clinic, as well as observations of multiple clinics across the United States.
Results
Preliminary outcome data on clinic adherence to treatment protocol under an IDC model are provided.
Conclusions
To meet the diverse healthcare needs of youth with DSD, comprehensive care clinics are recommended; however, few such clinics exist in the United States. Establishing new comprehensive DSD clinics can be challenging due to the highly unique treatment of DSD, but the current paper expands the literature available to guide clinic development in the United States. | | Link for e-copy: | http://www.journals.elsevier.com/journal-of-pediatric-nursing/ | | Record link: | http://libsearch.siu.ac.th/siu/opac_css/index.php?lvl=notice_display&id=27629 |
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Recommendations for the Establishment of Disorders/Differences of / Bakula, Dana M. in Journal of Pediatric Nursing, Vol.37 No.6 (Nov-Dec) 2017 ([03/29/2018]) 
